Love is patient and kind; love does not envy or boast; it is not arrogant or rude. It does not insist on its own way; it is not irritable or resentful; it does not rejoice at wrongdoing, but rejoices with the truth. Love bears all things, believes all things, hopes all things, endures all things.
1 Corinthians 13:4-7
10/1/2013: Today, we were so excited to begin the treatment. They upped Ketamine to 300 due to
the fact that she handled it is well. However, as the dose moved up so did Heidi's awareness of
everything including the battle between the Ketamine and her nerves. She was awake almost the
whole time. She wasn't agitated just frustrated because everyone else was under and sleeping like a
baby. They keep upping the dose of sleep meds but found it unsuccessful. Frustration set in. Her body
was a contrast of feeling numb on the outside and having millions of tiny knives hacking away at her
nerves on the inside. She stayed calm and polite. They finished the treatment and said they would talk
with the doctor tomorrow to see what else they could do. At least we could still kiss her a little.
10/2/2013: Today's treatment went about the same. They kept her at the 400 mg of Ketamine and
doubled her sleep meds. They added other sleep aids but to no avail. Same response. Her wit and
humor increased under the drugs and she was fully aware of her surroundings. The nurses were
stumped. Pain is still lower than normal which is good.
Today we pretty much had the same response. They kept the dose at 400 and tried to see if they
could adjust her medication to get her to relax an sleep. No dice! She is now starting to worry that
the treatment wont take, which does not help relax the nerves. To her credit the pain is still less
than before and she is working with the doctors to see what can be done to induce and encorage
her to sleep.
They have kept the dose of Ketamine the same and have literally tried and given her everything
except "hitting her over the head with the kitchen sink." The doctor and nurses have never come
across this before. The quote is "she's had enough to take down a full grown dinosaur and then
some." Pain is still down some and she is conversing with us more and going to the bathroom
with less assistance but the burning is still there and she is still fighting. Baby steps...(:
There are some changes happening and we are grateful for that.
We joke that its a good thing she doesn't like drug or alcohol! We thank everyone for there love and
support. There are no easy answers for this and it will be a continuing battle but thanks to your
continuing support we can try to relieve her pain as best we can for now and keep fighting.
Hopefully. I will have a chance to post some small clips soon!